TSC Now

Latest Episodes
Episode 10: Expanding Coverage and Ensuring Access to Medications
In episode 10 of TSC Now, host Dan Klein talks to Darcy Krueger, MD, PhD, TSC Clinic Director at Cincinnati Children’s Hospital. They discuss the recent FDA approval of the Sabril label expansion, the study he led that served as supplemental material f...
Episode 9: The State of the TS Alliance
In episode 9 of TSC Now, host Dan Klein talks to Tuberous Sclerosis Alliance President and Chief Executive Officer Kari Luther Rosbeck. They discuss her favorite memories from the organization’s 45th anniversary year in 2019,
Episode 8: Excerpts from AES and the Current State of Epilepsy Research
In the eighth episode of TSC Now, host Dan Klein catches up with TS Alliance partners at the annual American Epilepsy Society Meeting (AES), the largest gathering on epilepsy in the world, which was held December 6-10 in Baltimore.
Episode 7: Common Parent/Caregiver Challenges and Advocating for Your Health
In the seventh episode of TSC Now, host Dan Klein explores common challenges parents, caregivers and those affected by tuberous sclerosis complex (TSC) face when managing their health and seeking care from physicians. First,
Episode 6: TSC-Associated Neuropsychiatric Disorders (TAND)
In episode 6 of TSCnow, host Dan Klein talks to Petrus de Vries, MBChB, MRCPsych, PhD, Sue Struengmann Professor of Child and Adolescent Psychiatry at the University of Capetown in South Africa. They discuss tuberous sclerosis complex (TSC)-associated ...
Episode 5: TSC Kidney Manifestations & Consensus Guidelines for Surveillance and Treatment
In episode 5 of TSC Now, Dan Klein talks to Dr. John Bissler, MD, Clinic Director of the Tuberous Sclerosis Complex Center of Excellence located at Le Bonheur Children’s Hospital, Director of Pediatric Nephrology at the University of Tennessee Health S...
Episode 4: Educational Issues in TSC and How to Advocate for Your Child in School
In the fourth episode of TSC Now, host Dan Klein talks to Lilian Ansari, MS, Special Needs Advocate, Co-Chair of the TS Alliance of Northern California and Education Parent Mentor. They discuss why she volunteered as an Education Parent Mentor,
Episode 3: The 2019 International TSC Research Conference
In the third episode of TSC Now, host Dan Klein, Director of Digital Platforms for the Tuberous Sclerosis Alliance, talks to the two co-chairs of the 2019 International TSC Research Conference: Changing the Course of TSC. First Dan interviews Dr.
Episode 2: Epilepsy in TSC and Laser Ablation Surgery with Dr. Daniel Curry
In the second episode of TSC Now host Dan Klein talks to Dr. Daniel Curry, Director of Functional Neurosurgery and Epilepsy Surgery at Texas Children’s Hospital in Houston. They discuss how he became a neurosurgeon,
Episode 1: TSC Global Day, 45th Anniversary and the Future of TSC Research
Welcome to the debut episode of TSC Now, a podcast from the Tuberous Sclerosis Alliance! In this episode Dan Klein, Director of Digital Platforms, talked to Jennifer Flinn from TS Canada ST, Eva Schoeters from Be-TSC in Belgium,