TSC Now

TSC Now


Latest Episodes

Episode 18: Understanding COVID-19’s Impact on Those with TSC & LAM
November 24, 2020

In episode 18 of TSC Now, host Dan Klein talks to Nishant Gupta, MD, Associate Professor in the Division of Pulmonology, Critical Care and Sleep Medicine at the University of Cincinnati where he serves as the Director of the Interstitial and Rare Lung ...

Episode 17: Gene Therapy in TSC
October 30, 2020

In episode 17 of TSC Now, host Dan Klein talks to Xandra Breakefield, PhD, Professor of Neurology at Harvard Medical School and a geneticist, specializing in neurology & tadiology at Massachusetts General Hospital. Dr.

Episode 16: COVID-19 and Back to School
August 28, 2020

In episode 16 of TSC Now, host Dan Klein talks to two of the TS Alliance’s Education Parent Mentors to better understand how parents should approach making the decision on sending their kids back to school during the ongoing COVID-19 pandemic and what ...

Episode 15: Managing Behaviors During COVID-19 (Part 2) + A New Partnership with SeizureTracker
July 31, 2020

In episode 15 of TSC Now, host Dan Klein continues exploring how to manage harmful and disruptive behaviors associated with TSC-associated neuropsychiatric disorders (TAND) during the ongoing COVID-19 pandemic.

Episode 14: Managing Aggressive and Harmful Behaviors During COVID-19 (Part 1)
June 30, 2020

In episode 14 of TSC Now, host Dan Klein begins the first of an important two-part discussion focused on how parents can begin to address aggressive and harmful behaviors associated with TSC-associated neuropsychiatric disorders (TAND),

Episode 13: TSC Global Awareness Month in the Age of COVID-19
May 31, 2020

In episode 13 of TSC Now, host Dan Klein celebrates TSC Awareness Month and one full year of podcasting by once again reaching out to some of the Tuberous Sclerosis Alliance’s international partners with the help of Katie Smith,

Episode 12: Living with TSC During COVID-19
April 26, 2020

In episode 12 of TSC Now, host Dan Klein does a deep dive on the ongoing COVID-19 crisis and its impact on the tuberous sclerosis complex (TSC) community. Throughout the episode he shares resources the Tuberous Sclerosis Alliance (TS Alliance) has deve...

Episode 11: A #March4TSCresearch Recap & Update on COVID-19
March 31, 2020

In episode 11 of TSC Now, host Dan Klein recaps our annual March on Capitol Hill, which took place on March 4, 2020 in Washington, DC and brought together more than 100 volunteers from across the country to advocate for continued funding for the Tubero...

Episode 10: Expanding Coverage and Ensuring Access to Medications
February 26, 2020

In episode 10 of TSC Now, host Dan Klein talks to Darcy Krueger, MD, PhD, TSC Clinic Director at Cincinnati Children’s Hospital. They discuss the recent FDA approval of the Sabril label expansion, the study he led that served as supplemental material f...

Episode 9: The State of the TS Alliance
January 22, 2020

In episode 9 of TSC Now, host Dan Klein talks to Tuberous Sclerosis Alliance President and Chief Executive Officer Kari Luther Rosbeck. They discuss her favorite memories from the organization’s 45th anniversary year in 2019,