TSC Now

TSC Now


Latest Episodes

Episode 29: The TSC Navigator
October 29, 2021

In Episode 29 of TSC Now, host Dan Klein highlights TSC Navigator, an easy-to-use, interactive online tool to help guide individuals and families through the complexities of tuberous sclerosis complex

Episode 28: Comedy for a Cure® 2021!
September 30, 2021

In a very special episode of TSC Now, host Dan Klein provides a sneak peek of the 19.5 Annual Comedy for a Cure® on Sunday October 17 at 7:30 pm Eastern/ 4:30 pm Pacific! This will be a hybrid event,

Episode 27: Going Back to School and Caring for the Caregiver
August 31, 2021

In Episode 27 of TSC Now, host Dan Klein learns how parents can prepare for the start of a new school year despite the ongoing pandemic. Dan also talks to a licensed professional counselor to get advi

Episode 26: The Road to Newborn Screening in TSC
July 29, 2021

In Episode 26 of TSC Now, host Dan Klein takes a deep dive into one of the newer and exciting frontiers in TSC research: Newborn Screening. Last Fall, the TSC Alliance hosted an Innovation Workshop th

Episode 25: Lymphangioleiomyomatosis & Worldwide LAM Awareness Month (#WWLAM)
June 30, 2021

In Episode 25 of TSC Now, host Dan Klein recognizes Worldwide LAM Awareness Month (#WWLAM) by focusing on lymphangioleiomyomatosis (LAM), a rare lung disease affecting women that is characterized by a

Episode 24: Achieving Universal Health Coverage and Driving Innovative Research Through Global Collaboration
May 28, 2021

It’s the two-year anniversary of TSC Now and we’re celebrating with a new name, the TSC Alliance! If you missed our announcement on May 16, the Tuberous Sclerosis Alliance has changed our name to the TSC Alliance to reflect how the organization has evo...

Episode 23: Autism Spectrum Disorder in TSC and TACERN
April 30, 2021

In Episode 23 of TSC Now, host Dan Klein recognizes World Autism Month and Autism Acceptance Month by learning more about autism spectrum disorder (ASD) in tuberous sclerosis complex (TSC). ASD occurs in nearly 50% of children with TSC,

Episode 22: Overcoming Hurdles with Health Plans and Specialty Pharmacies
March 30, 2021

In Episode 22 of TSC Now, host Dan Klein explores overcoming hurdles in healthcare, specifically to help parents/caregivers and individuals with tuberous sclerosis complex (TSC) navigate issues with access to medications,

Episode 20: The 2021 Virtual March on Capitol Hill
January 29, 2021

In the first episode of TSC Now, host Dan Klein dives deep on the upcoming Virtual March on Capitol Hill taking place March 1-5, 2021. Due to the ongoing COVID-19 pandemic, the TS Alliance has decided to protect our volunteers by holding the march virt...

Episode 19: Infantile Spasms Awareness Week (#ISAW2020)
December 08, 2020

In a very special early edition of TSC Now, host Dan Klein explores the topic of infantile spasms (IS) as Infantile Spasms Awareness Week (ISAW), held annually December 1-7 to raise awareness of IS with both parents/caregivers and frontline physicians,...