Roe Nania shares her familys story with Vascular Ehlers-Danlos syndrome (VEDS). Roes brother, Angelo, was the first person diagnosed in the family, and died from an aortic dissection in 2019. After

Kevin Kroeker shares his story with Loeys-Dietz syndrome, which he was diagnosed with in his 50s after a spontaneous coronary artery dissection (SCAD). His Loeys-Dietz diagnosis explained a prior even

Tyler Farley was originally on Staying Connected in 2022 to share his story with VEDS or Vascular Ehlers-Danlos Syndrome. He returns in this episode to share his recent experience with a bowel perfora

Liam Nelson was diagnosed with Marfan syndrome when he was 11 years old. In this interview, we talk about how he handled his diagnosis, his career in film and comedy, his involvement in the Marfan com

Lauren Atherton was diagnosed with Loeys-Dietz syndrome after an aortic dissection when she was 28 years old. In this interview, we talk about that dissection, how shes dealt with her diagnosis, and

Michelle Lucena was diagnosed with VEDS, or Vascular Ehlers-Danlos syndrome, after two carotid artery dissections. In this interview, we talk about how these dissections affected her military career,

Taborski McClellen was diagnosed with Marfan syndrome between 12-13 years old. In the time since his diagnosis, hes had two retinal detachments, a lung collapse, and an aortic dissection. In this int

I was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS), in 2017. In this episode, Im joined by my brother, Jacob Frederick, to talk about his experience with my diagnosis and hospitalizations.

Allisons son, James, was diagnosed with Marfan when he was 3 years old, following a lens dislocation. James is now 8 years old, and in this episode, Allison talks about his diagnosis story, how they

Grace Barnhart was diagnosed with Marfan syndrome when she was 4 years old. Shes also a caregiver to her dad who has Marfan syndrome. In this episode, she talks about growing up with Marfan, getting