Deb Kruk was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in her mid-60s, following the loss of her 40 year old son, Brian, to an aortic dissection. They did not know Brian had VEDS when he d

Betsy Matarrita was born and raised in Costa Rica, and was diagnosed with Marfan syndrome when she was a young child. Growing up, she didnt know anyone else with Marfan syndrome, and they had to come

Roe Nania shares her familys story with Vascular Ehlers-Danlos syndrome (VEDS). Roes brother, Angelo, was the first person diagnosed in the family, and died from an aortic dissection in 2019. After

Kevin Kroeker shares his story with Loeys-Dietz syndrome, which he was diagnosed with in his 50s after a spontaneous coronary artery dissection (SCAD). His Loeys-Dietz diagnosis explained a prior even

Tyler Farley was originally on Staying Connected in 2022 to share his story with VEDS or Vascular Ehlers-Danlos Syndrome. He returns in this episode to share his recent experience with a bowel perfora

Liam Nelson was diagnosed with Marfan syndrome when he was 11 years old. In this interview, we talk about how he handled his diagnosis, his career in film and comedy, his involvement in the Marfan com

Lauren Atherton was diagnosed with Loeys-Dietz syndrome after an aortic dissection when she was 28 years old. In this interview, we talk about that dissection, how shes dealt with her diagnosis, and

Michelle Lucena was diagnosed with VEDS, or Vascular Ehlers-Danlos syndrome, after two carotid artery dissections. In this interview, we talk about how these dissections affected her military career,

Taborski McClellen was diagnosed with Marfan syndrome between 12-13 years old. In the time since his diagnosis, hes had two retinal detachments, a lung collapse, and an aortic dissection. In this int

I was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS), in 2017. In this episode, Im joined by my brother, Jacob Frederick, to talk about his experience with my diagnosis and hospitalizations.