Staying Connected

Staying Connected


Latest Episodes

Katy DeCoursey
December 10, 2022

Katy’s husband, Mike, and her son were diagnosed with VEDS in 2020. In this episode, Katy shares her perspective as a spouse and a mom of loved ones with this condition.  These episode show notes will

Kelly Gann
November 26, 2022

In todays episode, were going to talk to Kelly Gann, who was diagnosed with VEDS in 2009, when she was in Physician Assistant (PA) school. Kelly shares how she coped with that diagnosis, how her lif

Tyler Farley
November 12, 2022

In todays episode, were going to talk to Tyler Farley, who was diagnosed with VEDS following a bowel perforation when he was 17. The VEDS diagnosis explained many things for Tyler, including the ear

Samantha Arche
October 29, 2022

In todays episode, were going to talk to Samantha Arche, who was diagnosed with VEDS following a uterine rupture during the delivery of her second child. Samantha was concerned that she might have V

Cristy Gann
October 15, 2022

Cristy Gann was diagnosed with VEDS after her son Hunter died of an aortic dissection last year, in September of 2021. Hunter was only 14 years old. In this interview, Cristy shares what happened to H

Follow-up with Jeremias Tays
October 01, 2022

In todays episode, were going to touch base with Jeremias Tays, who was on the podcast back in 2019. Hes going to share his experience and insights over the last three years, as well as his experie

Sarah Fulop
September 17, 2022

Sarah Fulop was diagnosed with VEDS, or vascular Ehlers-Danlos Syndrome, after her sister died from complications following a pregnancy. Her brother also died of an aortic dissection at age 15, when s

Trailer: Season 4
September 10, 2022

This season we are going to talk to 7 members of our community about their stories and experiences with VEDS. Well hear from several people who have a VEDS diagnosis themselves, including a mom who l

Dr. Shaine Morris
June 11, 2022

Dr. Shaine Morris, pediatric cardiologist and researcher at Texas Childrens Hospital, and advocate for our VEDS community, shares how she got involved with the VEDS community and talks about her curr

Charlene Terrell-Newman and Luke
May 28, 2022

Charlenes son, Luke, was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) at the age of 4, after persistent issues with bruising and bleeding led to a hematologist and a diagnosis of Von Willebr