Maria Vowles and Mandy Carpenter, who lost their daughter, Andie, to Vascular Ehlers-Danlos Syndrome (VEDS) and founded Adventuresinlove4Andie, join to talk about Andies story. In this interview, we

Part 2 of a two-part interview featuring Chris Schelling, CEO and Founder of Acer Therapeutics, and Dr. Adrian Quartel, Chief Medical Officer of Acer Therapeutics. In this episode, Adrian joins to dis

Part 1 of a two-part interview featuring Chris Schelling, CEO and Founder of Acer Therapeutics, and Dr. Adrian Quartel, Chief Medical Officer of Acer Therapeutics. In this episode, Chris joins to disc

Jared Griffin, CEO and Founder of Annabelles Challenge, shares his experience with getting his daughters diagnosis of Vascular Ehlers-Danlos Syndrome (VEDS), and experience starting Annabelles Chal

Today we hear from a previous guest, Emily Ranta, who was on the show in 2018. In this episode, shell share her experience with a bowel perforation and how her life with VEDS has been since her last

Today we are gong to hear from Toni Harrison, who was initially diagnosed with hypermobile EDS. After an event, she received genetic testing that showed she actually has VEDS. In this episode, she is

Today we are gong to hear from a member of our community in the UK, Clare Stacey, who was diagnosed with VEDS following her mothers death when Clare was 14 years old. In the episode, she is going to

Clips from the upcoming season of Staying Connected, available on March 25 wherever you listen to podcasts. You can support this podcast by subscribing to my Patreon athttps://www.patreon.com/Translu

Over the last few seasons of Staying Connected, Ive asked some of our community members living with or caring for loved ones with Vascular Ehlers-Danlos Syndrome (VEDS) what they think medical profes

Katy’s husband, Mike, and her son were diagnosed with VEDS in 2020. In this episode, Katy shares her perspective as a spouse and a mom of loved ones with this condition.  These episode show notes will