Inspiring life despite a diagnosis

Inspiring life despite a diagnosis


Latest Episodes

Jessica and Jonathan: Growth Hormone Deficiency
March 02, 2020

Jessica and Johnathan were shocked and relieved to receive a diagnosis for their son Trenton. Jessica struggled for years to find a doctor who would help her. Her journey in advocacy led her to start a nonprofit organization called Collaborative Corne...

Maria Update: From a Fatal Diagnosis to Thriving
February 25, 2020

All Maria wanted was to be able to get the chance to tell Serenity how much she was loved. She said, “I just prayed and I asked God if he could just give me fifteen minutes to love her. To tell her how much I loved her.

Sock Talk- NIPT
February 20, 2020

In this episode Dr. Gerald Nebeker talks about NIPT prenatal testing and how the results are often misinterpreted.  NIPT Testing What is NIPT? NIPT stands for noninvasive prenatal testing. Doctors often use NIPT to screen for genetic abnormalities.

Janalen and Rocky: Prader-Willis Syndrome, Cystic Fibrosis, Adoption, and Down Syndrome
September 04, 2019

Rocky admits that at first he had worries and concerns about raising a child with special needs, but these concerns quickly dissolved. He tells us "The joy that comes when you sacrifice for other people and other things...

Stacy and Terry: Cri Du Chat syndrome
July 31, 2019

Stacy said that her daughters have been a blessing from the beginning but that she had to adjust her thinking to a different path than what she had expected. Now they are just "Sydney and Logan. Stacy tells us,

Cathy and Brian: Down Syndrome
July 18, 2019

Cathy McMorris Rodgers and her husband Brian Rodgers found out their son Cole had Down syndrome at his birth. "It was tough. The doctors laid out a lot of things and it was very difficult. The fear of the unknown is what is overwhelming in that moment....

Jessica and Chewy: Traumatic Brain Injury (TBI)
May 29, 2019

 Jessica is a single mom and the parent of two boys, Britton and Chewy. Britton was born at 28 weeks gestation weighing only two pounds and 14 ounces. He is 13 years old now and has had many health challenges,

Resource: Special Needs Parenting When Your Partner Is Abusive
April 23, 2019

For this Good In Our Community feature, we're featuring Betrayal Trauma Recovery. This is a great resource for anyone that is parenting a child with special needs, that has a parter who is abusive. Here is a blog written by their founder,

Nikki and Sean: OI- Brittle Bones
April 08, 2019

They told us they thought he had a form of dwarfism based on his femur length. His femurs are shortened and curved, which is a marker for other conditions. At 32 weeks we got the results back that it was Osteogenesis Imperfecta- also known as brittle b...

Natalie: Rett Syndrome and Facial Differences
March 19, 2019

"I held her and I cried and the nurse held me and from that moment on I said “I don’t care about anything else other than protecting her and doing whatever it takes to keep her happy and safe and loved.”