Inspiring life despite a diagnosis

Inspiring life despite a diagnosis


Jori and Dan: Autosomal Recessive Centronuclear Myopathy

February 06, 2019

When Luxton was born, he wasn't breathing, and doctors immediately called a code blue.  An MRI showed brain bleeds, but doctors didn't know why. Jori and Dan were sent home to care for Luxton. At 3 weeks old, Luxton's oxygen and heart rate plummeted,