Erick found out shortly after birth that his daughter Erika has Down syndrome. Erick believes that Erika has made him a better, more patient person and parent.Finding out your daughter has Down syndromeErick didnt find out about her diagnosis until aft

Daniel and his wife spent 11.5 years of their life devoted to taking care of their son Lucas.Lucas had a very rare condition called Menkes disease.Despite being total care, Lucas brought love, joy and happiness to their family.Menkes syndrome: Danie

Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life.  Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.SHINE syndrome: Brittne

When Wendy first found out that she had a son with Down syndrome she was devastated.  She felt as if her life was over and didnt know what life would look like for their future.  32 years later she now realizes how great her life is w

During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their babys bladder was large, and his kidneys were covered in cysts and had little to no function- a co

First signs something was wrong Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, He went to daycare and we would go in and not

utero something was wrong and were candid about their worries and stress. When Hadley was born all of that changed.

for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.

Dani and her family fought hard to receive an official diagnosis for her daughter Hayden.  After many specialists they finally received a diagnosis of DDX3X.  So rare that there that at that time there were less than 500 people that have ever be

Carrie was only 22 years old when she received the unexpected news that her son, Luke, was born with several disabilities. She lived far away from family, and single was single.