Pain / Withdrawal Cycle

Swallowing Evaluation AKA Diagnostic Fluoroscopy

Had pain and went to the Nurse Practitioner ..

Medication (mis-)management traps me in the the pain & withdrawal cycle. Read more for my visit to the nurse practicioner, diagnostic fluoroscopy, postlude with John John & more.

BEGIN TRANSCRIPT

JOHN HOPPIN: Welcome to the What's the Matter with Me Podcast, season three, episode 11, the pain withdrawals cycle. I'm always in some kind of recovery. I saw the nurse practitioner, now I'm medicated. I had a swallow exam, that's a diagnostic fluoroscopy. It was weird. Stay tuned.

Welcome to the, What's the Matter with Me Podcast. My name is John. I'm 40 years old. Husband, father of two, small business owner, radio DJ, podcaster and I have multiple sclerosis. I made this podcast to share what I'm going through.

Past the episodes can be downloaded on Apple podcasts or from whatsthematterwithme.org, or wherever you get it. I'm not a medical professional. Don't take this for medical advice and if you need medical advice, ask your healthcare provider.

It's true. I think the diagnostic fluoroscopy, that has to be one of the weirdest exams, that they make you swallow all kinds of weird stuff. Stay tuned.

First, let's recap.

Recap of S3 E10

Last episode, I talked about project euphonia and that's Google's project to help speech recognition for people with impaired speech. I had pain and drug withdrawal. What else? Like every episode. Last episode, shout outs to Rocky. Check out the last to episode, disability technology. It's on whatsthematterwithme.org, and Apple podcasts. Stream up, beam up, turn up and learn up.

I had pain again

I thought I was in recovery last episode. It started hurting. I went to the nurse practitioner. I was trying to tell her what happened, what was going on, but it hurt to talk. That's why I haven't been on What's the Matter with Me? Or talking at all really. And so it hurts to talk.

So trying to tell her what was going on. I started crying and it made me emotional because it hurt like hell. She ended up, she gave me some more pills. They thought I wasn't yet in the pharmaceutical range where the medication was affected. Somehow my bloodstream, we did some blood work and I still wasn't up to the level where it's providing pain relief, obviously.

So I had pain and went to the nurse. I cried, she gave me more pills. Now I'm in recovery. And it's this crazy cycle I'm still in. I have pain and then I get recovery because they increase medication. Then I start taking down the other medication, medication B and I go into withdrawal. They gave me some more of that and recovery. Then I start having pain again because medication A, I'm still not in that pharmaceutical range where it helps me. And so I go into recovery.

End result, right now I'm drugged.

I'm drugged ...

How long will the pain relief last? When am I going to go back into this cycle? I'm in recovery. It's too much. It's very heavy medication. So I've told my nurse, and we're even looking into robosurgery. It doesn't even always work for people, but at this point I've got to leave this cycle behind.

All right, so I don't want to be in that cycle. That's pretty easy to understand.

Diagnostic Fluoroscopy

Diagnostic fluoroscopy

"Eating fluorescent stuff"

Another thing that my doctor ordered, kind of back a couple of months ago, but the exam rolled its way around, and a couple of days ago, yesterday I had a swallow exam called the diagnostic fluoroscopy. So what does that mean? I'm eating fluorescent stuff that they can see on their tests and they're checking out my swallow area.

So first thing they did, set me down in the chair and it's just this X-ray, so that it's going through, I'm sitting next to a kind of x-ray sheet, and they're shining through my neck, like through my trachea. And they're having me eat stuff, so swallow things.