TSC Now

TSC Now


Latest Episodes

50th Anniversary Spotlight – Shonnie Johnson
June 27, 2024

2024 marks the 50th anniversary of the TSC Alliance, which was founded by four moms in Southern California in 1974. To celebrate the anniversary of the organization, throughout the year TSC Now will f

Episode 49: Community Spotlight – Gloria Triebenbach
December 29, 2023

In a final bonus episode in 2023, host Dan Klein connects with Gloria Triebenbach, Chair of the TSC Alliance of the Pacific Northwest and Step Forward to Cure TSC Walk Chair for the walk in Renton, Wa

Episode 48: Community Spotlight – Kristen Moore
December 26, 2023

In a bonus episode, host Dan Klein connects with Kristen Moore, Vice Chair of the TSC Alliance of the Carolinas and Step Forward to Cure TSC Walk Chair for the Carolinas Walk. Kristen and her husband,

Episode 47: Closing the Epilepsy Treatment Gap Worldwide
December 22, 2023

In this episode, host Dan Klein learns about Pretola Global Health and Consulting Limited and how they advocate for a better future for people living with epilepsy, learning disability and autism arou

Episode 46: Understanding drug resistant epilepsy and treatment options
October 27, 2023

In this episode of TSC Now, host Dan Klein interviews Karen Keough, MD, a child neurologist at Child Neurology Consultants of Austin. Dr. Keough defines drug resistant epilepsy (DRE), explains how lac

Episode 45: The 2023 International TSC Research Conference
October 19, 2023

On this episode of TSC Now, host Dan Klein recaps the 2023 International TSC Research Conference: Fueling the Future held September 7-9, 2023, in Washington, DC. The conference brought together over 2

Episode 44: Rare Conversations
April 20, 2023

Disclaimer: This episode is sponsored by Nobelpharma America LLC. The opinions expressed are those of the host and guest speaker individually and do not reflect the policies or positions of Nobelpharm

Episode 43: The TSC-STEPS Trial
March 15, 2023

In this episode of TSC Now, host Dan Klein dives deep on a new clinical trial in tuberous sclerosis complex (TSC) called TSC-STEPS. TSC-STEPS is a study to learn more about a drug known as Sirolimus a

Episode 42: Understanding Seizure Clusters
February 03, 2023

In the first episode of TSC Now in 2023, host Dan Klein recognizes International Epilepsy Day (February 13, 2023) and Seizure Action Plan Awareness Week (February 13-20, 2023) by learning about seizur

Episode 41: Help Today, Help Tomorrow
December 27, 2022

In the final episode of TSC Now in 2022, host Dan Klein connects with two incredible advocates for individuals with disabilities and learns how families can find support to help them with both everyda