TSC Now

TSC Now


Latest Episodes

Episode 21: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC
February 08, 2021

In a very special early episode of TSC Now, host Dan Klein recognizes International #EpilepsyDay and the first day of the first-ever Seizure Action Plan Awareness Week. In November, a collaboration of three non-profit organizations,

Episode 20: The 2021 Virtual March on Capitol Hill
January 29, 2021

In the first episode of TSC Now, host Dan Klein dives deep on the upcoming Virtual March on Capitol Hill taking place March 1-5, 2021. Due to the ongoing COVID-19 pandemic, the TS Alliance has decided to protect our volunteers by holding the march virt...

Episode 19: Infantile Spasms Awareness Week (#ISAW2020)
December 08, 2020

In a very special early edition of TSC Now, host Dan Klein explores the topic of infantile spasms (IS) as Infantile Spasms Awareness Week (ISAW), held annually December 1-7 to raise awareness of IS with both parents/caregivers and frontline physicians,...

Episode 18: Understanding COVID-19’s Impact on Those with TSC & LAM
November 24, 2020

In episode 18 of TSC Now, host Dan Klein talks to Nishant Gupta, MD, Associate Professor in the Division of Pulmonology, Critical Care and Sleep Medicine at the University of Cincinnati where he serves as the Director of the Interstitial and Rare Lung ...

Episode 17: Gene Therapy in TSC
October 30, 2020

In episode 17 of TSC Now, host Dan Klein talks to Xandra Breakefield, PhD, Professor of Neurology at Harvard Medical School and a geneticist, specializing in neurology & tadiology at Massachusetts General Hospital. Dr.

Episode 16: COVID-19 and Back to School
August 28, 2020

In episode 16 of TSC Now, host Dan Klein talks to two of the TS Alliance’s Education Parent Mentors to better understand how parents should approach making the decision on sending their kids back to school during the ongoing COVID-19 pandemic and what ...

Episode 15: Managing Behaviors During COVID-19 (Part 2) + A New Partnership with SeizureTracker
July 31, 2020

In episode 15 of TSC Now, host Dan Klein continues exploring how to manage harmful and disruptive behaviors associated with TSC-associated neuropsychiatric disorders (TAND) during the ongoing COVID-19 pandemic.

Episode 14: Managing Aggressive and Harmful Behaviors During COVID-19 (Part 1)
June 30, 2020

In episode 14 of TSC Now, host Dan Klein begins the first of an important two-part discussion focused on how parents can begin to address aggressive and harmful behaviors associated with TSC-associated neuropsychiatric disorders (TAND),

Episode 13: TSC Global Awareness Month in the Age of COVID-19
May 31, 2020

In episode 13 of TSC Now, host Dan Klein celebrates TSC Awareness Month and one full year of podcasting by once again reaching out to some of the Tuberous Sclerosis Alliance’s international partners with the help of Katie Smith,

Episode 12: Living with TSC During COVID-19
April 26, 2020

In episode 12 of TSC Now, host Dan Klein does a deep dive on the ongoing COVID-19 crisis and its impact on the tuberous sclerosis complex (TSC) community. Throughout the episode he shares resources the Tuberous Sclerosis Alliance (TS Alliance) has deve...