Elissa Hanneman was initially misdiagnosed with Classical Ehlers-Danlos Syndrome (CEDS) as a child, but a colon perforation during her pregnancy prompted genetic testing for Vascular Ehlers-Danlos Syndrome (VEDS). Years after her diagnosis, Elissa lost all of her intestines in a two-year hospital stay due to complications from VEDS.

Please be advised that in this episode, we discuss suicide and suicide intent. If you or someone you know needs help, there are resources available to you. In the US, you can get help by calling or texting 988, the Suicide and Crisis Lifeline, 24/7. If you are outside of the US, I’ve linked a list of hotlines and resources below.

Find more information about VEDS, including support groups and medical webinars, at https://TheVEDSMovement.org. 

If you would like to share your story with VEDS on this podcast, visit 

https://staying-connected.blubrry.net/contact/

Links mentioned in the episode

Suicide and Crisis Lifeline- US: Call or text 988, or visit:

https://988lifeline.org

International Suicide Hotlines

https://blog.opencounseling.com/suicide-hotlines/

VEDS Camp, hosted by the Ehlers-Danlos Society in partnership with The VEDS Movement

https://www.ehlers-danlos.com/events/veds-family-camp/

The Marfan Foundation Conference: 

https://marfan.org/conference/

The Marfan Foundation Walk for Victory:

https://marfan.org/walk

Support

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Jon Holtom
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Adventuresinlove4Andie
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Disclaimer 

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer. 

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