Staying Connected
Latest Episodes
Amos Marsters
Today well be talking to Amos Marsters, who grew up with the knowledge of VEDS and a family history. Amos lost his father at 6 years old, and then his brother at 12 years old. He has also had a numbe
Call for interviewees for the next season of Staying Connected!
Its been a minute, and I am excited to get back to the show. If youre interested in sharing your story on the next season, please let me know by filling out this form. https://calendly.com/d/z7h-2cc
Carlos Morales, sharing Kaitlyn’s story
Today, were going to talk to Carlos Morales, who lost one of his children, Kaitlyn, to an aortic dissection in 2023 at the age of 14. This aortic dissection led to their diagnosis of Loeys-Dietz synd
Carmen David
Today, were going to talk to Carmen David, who is going to share her experience with an aortic dissection after the delivery of her second daughter, her experiences recovering from that physically an
Reconnecting with Bella Marin aka in_VEDS_tigator
Today, were going to talk to Bella Marin, who was previously on the show to talk about her story with VEDS, or Vascular Ehlers-Danlos syndrome. In todays episode, she is returning to the show to tal
Marisa Hart
In this episode, we talk to Marisa Hart, who was diagnosed with Marfan syndrome as a child. Marisa has an extensive family history and shares how Marfan has impacted her life, from sports, to seeing f
Tammy Asplund
Today were going to talk to Tammy Asplund about her story with Loeys-Dietz syndrome, which she was diagnosed with at 52 after her son found out he had an aneurysm and also needed open heart surgery.
Ryan Rodarmer
Today were going to talk to Ryan Rodarmer, the director of The VEDS Movement, about his personal experience with aortic aneurysm and dissection, and his career as a genetic counselor working with con
Claudia Arbelaez
Claudia Arbelaez joins the show to share her story with Vascular Ehlers-Danlos syndrome (VEDS), which she was diagnosed with in 2020 after a kidney infarction and vascular rupture. A couple yearsafte
Bridget Porter (Metz) sharing Connor’s story with Loeys-Dietz syndrome
Bridget Porter (Metz) joins the show to share her son, Connors, story with Loeys-Dietz syndrome, which he was diagnosed with after he died of an aortic dissection at the age of 13. Connor was seen by





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