Today were going to talk with Paul Korotish, who was just diagnosed with VEDS last year after an iliac artery rupture. Information mentioned in the episode: 2017 International Classification of Ehle

Today were going to talk with Dr. David Murdock, a clinical geneticist at the University of Texas Health Science Center who is doing research in connective tissue conditions, including VEDS, Marfan,

In this episode, were going to talk with Mike Osuna and Jeanette Garcia-Osuna about their son, Lucass, story with Loeys-Dietz syndrome, type 2. Lucas died at the age of 15 from an aortic dissection

In this episode, were going to reconnect with Grace Barnhart, who was on the show a couple years ago sharing her personal story and caregiver story with Marfan syndrome. Grace is coming back on the s

Today well be talking to Amos Marsters, who grew up with the knowledge of VEDS and a family history. Amos lost his father at 6 years old, and then his brother at 12 years old. He has also had a numbe

Its been a minute, and I am excited to get back to the show. If youre interested in sharing your story on the next season, please let me know by filling out this form. https://calendly.com/d/z7h-2cc

Today, were going to talk to Carlos Morales, who lost one of his children, Kaitlyn, to an aortic dissection in 2023 at the age of 14. This aortic dissection led to their diagnosis of Loeys-Dietz synd

Today, were going to talk to Carmen David, who is going to share her experience with an aortic dissection after the delivery of her second daughter, her experiences recovering from that physically an

Today, were going to talk to Bella Marin, who was previously on the show to talk about her story with VEDS, or Vascular Ehlers-Danlos syndrome. In todays episode, she is returning to the show to tal

In this episode, we talk to Marisa Hart, who was diagnosed with Marfan syndrome as a child. Marisa has an extensive family history and shares how Marfan has impacted her life, from sports, to seeing f