Staying Connected

Staying Connected


Special: Emotional Recovery

May 21, 2024

After my recent renal dissection, kidney infarction, and iliac dissection with Vascular Ehlers-Danlos Syndrome (VEDS), I wanted to know what emotional recovery was like for others after medical events. This episode features clips of people with VEDS, Marfan, and Loeys-Dietz syndromes, sharing what emotional recovery was like for them after diagnosis, major medical events and the loss of loved ones.



Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org



If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit 



https://calendly.com/d/z7h-2cc-g33



Links to resources, events, and research opportunities: 



VEDS Collaborative Research Study: Email vedscoll@ohsu.edu 



Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:



https://marfan.org/calendar



Join a Walk for Victory:



https://marfan.org/walk



Help and Resource Center



https://marfan.org/ask



https://loeysdietz.org/ask



https://thevedsmovement.org/ask



Support



You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone 



Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:



Jon Holtom
Adventuresinlove4Andie
Ashton Tanner
Ryan Rodarmer
Benjamin Weisman



Disclaimer 



The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer. 



Transcript



https://staying-connected.blubrry.net/wp-content/uploads/2024/05/SC_Special_Emotional-Recovery.pdf





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