Peter Donato, who was diagnosed with Loeys-Dietz Syndrome, or LDS, in fifth grade, shares his experience growing up with LDS, being involved in the community and the teen program at The Marfan Foundation, and its division, the Loeys-Dietz Syndrome Foundation, and adapting his love of sports to his life with LDS while maintaining his health. 

Find more information about LDS including support groups and medical webinars, at https://www.loeysdietz.org/ 

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit 

https://calendly.com/d/z7h-2cc-g33

Links mentioned in the episode: 

The Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation programming announcement: 

https://marfan.org/2023/08/21/announcing-2023-2024-foundation-programs/

Join a Walk for Victory:

https://marfan.org/walk/

Positive Exposure 

https://positiveexposure.org/

Peter’s Twitter handle:
@petahchip19

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Disclaimer 

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer. 

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