Following her son's diagnosis with X-linked adrenoleukodystrophy (ALD) Kathleen O'Sullivan-Fortin took an active role as patient advocate for her son. Listen

Joyce and Robin talk with Dr. Roni Zeiger, CEO of SmartPatients, about the resources for cancer patients available through SmartPatients.com Listen

A unique event will take place in Boston February 27-28, 2016 ... a Cancer Hack-a-thon, sponsored by the Consortium for Affordable Medical Technologies. Listen

Robin and Joyce speak with Susan Poteat, MS, radiation physicist, about the different kinds of medical imaging, their pros and cons, and why one might be ordered versus another. Listen

The Dana Farber/Harvard Cancer Center presents its first ever conference on the genetics of cancer April 9 at the Jimmy Fund Auditorium, beginning at 7 AM. Listen

Diane Tomaz of the Massachusetts Adoption Resources Exchange (MARE) talks about adoption and the needs of the children waiting in foster care. Listen

Discussion of how the VHL Handbook helps both patients and doctors, and the power of sharing information -- among patients and physicians worldwide. Listen

Lesley Bennett, state coordinator for NORD in Connecticut, speaks about the role of the consumer in medical organizations. Listen

What happens at a patient support conference? Is it worthwhile to go, or will it be stressful? Carla talks about her recent experience. Listen

The Kidney Cancer Association's annual symposium for physicians included more patients this year, adding a rich dimension to the affair. Listen