Powerful Patient
Latest Episodes
Breathing Problems? Consider SubGlottic Stenosis (SGS)
Catherine Anderson has prepared a Rough Guide for patients to help with SubGlottic Stenosis (SGS), or scar tissue in the trachea constraining breathing. Listen
Understanding and Managing Post Polio Syndrome
Ina Pinkney, the Breakfast Queen of Chicago, joins Joyce Graff to speak about Post Polio Syndrome, which can impact someone who survived polio. Listen
Talking with Joyce Graff
Host Harvey Bravman focuses on her work with Powerful Patient, empowering people to partner with their health care providers and manage their own health. Listen
Then and Now – VHL Alliance in 1994 and 2021
Members of the 1994 Board of Directors of the VHL Alliance meet with Chandra Clark, current Executive Director, and Heidi Leone, Director of Advancement. Listen
Bruising? Bleeding? Lightheaded standing up? Heart Racing? Consider POTS
Positional Orthostatic Tachycardia Syndrome (POTS) is a multi-system conditions that are very tricky to diagnose. It may be an auto-immune disorder. Listen
International Kidney Cancer Coalition (IKCC)
Meet Marta Szulc (say "Shultz") Marta Szulc First Ever Executive Director IKCC
Help for Teens with Migraines
https://powerfulpatient.org/wp-content/uploads/2021/04/mcvige-140.png Dr. Jennifer McBige helps us understand what makes migraines different, and new non-drug treatment options including one approved for teens. Listen
Why We Do the Things We Do
Bob Raleigh talks about his research into why we do the things we do. He describes how doctors and counselors can shape their messages in order to be heard. Listen
COVID-19 and Participatory Medicine
Author Michael Millenson speaks with us about how people with complex medical conditions need to work with their doctors to manage the risks of COVID-19. Listen
Surviving the Pandemic: Depression and COVID-19
Mindy Jo Rigel, of WorryAboutYouToday.com shares her experiences with COVID-19 diagnosis -- it felt like a sinus infection, until she lost her sense of smell. Listen