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Before Helping Others With CFS Recovery, Miguel Battled For His Health
After recovering from CFS (chronic fatigue syndrome aka myalgic encephalomyelitis) Miguel Bautista felt like he had a new lease on life. At the height of his illness he was unable to walk or sit up in
Amee is Finally Opening Up About Epilepsy 35 Years After Being Diagnosed
When Amee was first diagnosed with epilepsy at 8 years old, one simple medication was able to control her disease. This made it easy to hide her illness from almost everyone in her life, which remaine
Being Crushed by a Tree Changed Steve Lovelace’s Life Forever
In 1982 Steve Lovelace was pinned by a felled tree that barber chaired, meaning it split lengthwise while being cut down. His injuries were severe - his face and several vertebrae were crushed. Steve
Announcing the Undiagnosed Disease Fund!
Andi and Jesse are married! For their wedding registry they asked their community to donate to an Undiagnosed Disease Fund, with the goal of raising enough money to provide genetic testing for an indi
Introducing Guava: A Personalized Chronic Illness Management App
Living with a chronic health condition is difficult enough, but managing health records, medications and symptom tracking can feel impossible. That's what the folks at Guava are trying to fix. They ha
Defying the Odds: Danielle’s Journey with Cerebral Palsy
Danielle was born a micro preemie at just 25 weeks, weighing only 1 pound 8 ounces. Diagnosed with cerebral palsy, doctors gave her a .5% chance of living a meaningful life. Alongside cerebral palsy,
Jen From My Spoonie Sisters On How RA Led to Medically Induced Pustular Psoriasis
Jennifer Weaver is the host of the My Spoonie Sisters podcast, and her history with chronic illness is a storied tale. While most people never have to worry about the 1% chance of side effects from me
Fighting Back Against CFS/ME With Dr. Hoppers
Dr. Melanie Hoppers never planned to become an expert on chronic fatigue syndrome (CFS). She learned about it briefly in medical school, but her professors largely brushed off the complaints of CFS pa
From Lupus to Fibromyalgia: Kindra’s Evolving Diagnosis
For Kindra, it's been a 17 year journey to figure out why she is chronically ill. Her symptoms started around 14 years old, and include not just widespread chronic pain, but also severe fatigue and br
Are Scoliosis, Kyphosis and EDS Connected? Billie’s Twisty Tale
In 5th grade Billie's classmates were all evaluated for scoliosis, and she was the one person in her entire class who had it. Scoliosis is a condition in which a person's spine has an irregular curve,