Staying Connected

Staying Connected


Latest Episodes

Samantha Arche
October 29, 2022

In todays episode, were going to talk to Samantha Arche, who was diagnosed with VEDS following a uterine rupture during the delivery of her second child. Samantha was concerned that she might have V

Cristy Gann
October 15, 2022

Cristy Gann was diagnosed with VEDS after her son Hunter died of an aortic dissection last year, in September of 2021. Hunter was only 14 years old. In this interview, Cristy shares what happened to H

Follow-up with Jeremias Tays
October 01, 2022

In todays episode, were going to touch base with Jeremias Tays, who was on the podcast back in 2019. Hes going to share his experience and insights over the last three years, as well as his experie

Sarah Fulop
September 17, 2022

Sarah Fulop was diagnosed with VEDS, or vascular Ehlers-Danlos Syndrome, after her sister died from complications following a pregnancy. Her brother also died of an aortic dissection at age 15, when s

Trailer: Season 4
September 10, 2022

This season we are going to talk to 7 members of our community about their stories and experiences with VEDS. Well hear from several people who have a VEDS diagnosis themselves, including a mom who l

Dr. Shaine Morris
June 11, 2022

Dr. Shaine Morris, pediatric cardiologist and researcher at Texas Childrens Hospital, and advocate for our VEDS community, shares how she got involved with the VEDS community and talks about her curr

Charlene Terrell-Newman and Luke
May 28, 2022

Charlenes son, Luke, was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) at the age of 4, after persistent issues with bruising and bleeding led to a hematologist and a diagnosis of Von Willebr

Episode 8- Chrystal
November 25, 2018

Chrystal was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) along with her mother and brother. She has survived a pregnancy and is the last surviving member of her family who has vEDS. She was an inspiring person to talk to!

Elastosis Perfa…what?
May 18, 2018

My first on-paper clue to vEDS- Elastosis Perforans Serpiginosa.

Thin-skinned
April 25, 2018

The humorous story of my serious cat scratch, and associated emergency room visit.