Staying Connected
Latest Episodes
Samantha Arche
In todays episode, were going to talk to Samantha Arche, who was diagnosed with VEDS following a uterine rupture during the delivery of her second child. Samantha was concerned that she might have V
Cristy Gann
Cristy Gann was diagnosed with VEDS after her son Hunter died of an aortic dissection last year, in September of 2021. Hunter was only 14 years old. In this interview, Cristy shares what happened to H
Follow-up with Jeremias Tays
In todays episode, were going to touch base with Jeremias Tays, who was on the podcast back in 2019. Hes going to share his experience and insights over the last three years, as well as his experie
Sarah Fulop
Sarah Fulop was diagnosed with VEDS, or vascular Ehlers-Danlos Syndrome, after her sister died from complications following a pregnancy. Her brother also died of an aortic dissection at age 15, when s
Trailer: Season 4
This season we are going to talk to 7 members of our community about their stories and experiences with VEDS. Well hear from several people who have a VEDS diagnosis themselves, including a mom who l
Dr. Shaine Morris
Dr. Shaine Morris, pediatric cardiologist and researcher at Texas Childrens Hospital, and advocate for our VEDS community, shares how she got involved with the VEDS community and talks about her curr
Charlene Terrell-Newman and Luke
Charlenes son, Luke, was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) at the age of 4, after persistent issues with bruising and bleeding led to a hematologist and a diagnosis of Von Willebr
Episode 8- Chrystal
Chrystal was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) along with her mother and brother. She has survived a pregnancy and is the last surviving member of her family who has vEDS. She was an inspiring person to talk to!
Thin-skinned
The humorous story of my serious cat scratch, and associated emergency room visit.