The Vulva Diaries
Lichen Sclerosus and Vulvar Cancer: A Patient's Journey and Advocacy Mission
This is our first patient interview episode! In this episode Dr. Selk interviews Clare Baumhauer, who is a patient with lichen sclerosus and vulvar cancer, a patient advocate for these conditions, and the co-founder of the UK Vulvar Cancer Awareness Group. Topics covered include Clare's patient journey, including her long road to diagnosis, reasons for lack of patient and healthcare provider awareness about vulvovaginal diseases, difficulties with finding knowledgable practitioners, the story behind her amazing campaign, importance of correcting misinformation about steroid use for treating lichen sclerosus, advice for vulvovaginal disease patients, messages to healthcare providers about lichen sclerosus and vulvar cancer, and the importance of patient support groups.