Staying Connected

Staying Connected


Maya Brown-Zimmerman

July 15, 2023

In this episode of Staying Connected, we talk to Maya Brown-Zimmerman, who was diagnosed with Marfan syndrome as a child. Because of her atypical features and medical events, her diagnosis was questioned several times and she was tested for VEDS and Loeys-Dietz before a genetic test revealed she does have an FBN1 mutation, associated with Marfan syndrome. In this episode, she shares her story with Marfan syndrome, advocacy, and her recent SCAD, or spontaneous coronary artery dissection. 



Find more information about Marfan syndrome, including support groups and medical webinars, at marfan.org 



If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit 



https://staying-connected.blubrry.net/contact/



Support



You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone 



Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:



Jon Holtom
Kacey Keegan
Adventuresinlove4Andie
Ashton Tanner
Ryan Rodarmer



Disclaimer 



The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer. 





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