Seizing Life

Seizing Life


Latest Episodes

Fostering a Good Relationship with Your Child’s Epilepsy Care Team
January 08, 2025

This month on Seizing Life Patricia Dean, ARNP and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Childrens Hospital in Miami, discusses managing the relationship w

SCN8A and Infantile Spasms: A Mother & Researcher Pursues a New Potential Therapy
December 04, 2024

Dr. Madeleine Oudin shares her daughters epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pur

Rocking for Research: The Inspiration and Impact of Joey’s Song
November 06, 2024

Joeys Song founder Mike Gomoll shares his sons epilepsy story and discusses the creation, growth, and evolution of Joeys Song into the multi-artist, multi-day, Freezing Man Festival.

One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising
October 02, 2024

In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundrai

Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy
September 04, 2024

This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epil

Post-Traumatic Epilepsy: What We Know and Where the Research is Going
August 13, 2024

This month onSeizing Life we speak with Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy about the current state of research into Post-Traumatic Epilepsy (PTE) in the wake of a recent I

Post-Traumatic Epilepsy: A Lasting Impact on our Veterans
July 11, 2024

Seizures resulting from traumatic brain injuries continue to impact American veterans with epilepsy long after other combat wounds have healed.

Epilepsy and College: How to Survive and Thrive
July 11, 2024

A college student with epilepsy offers advice on not only how to survive, but also thrive.

The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy
July 03, 2024

After losing her son to a rare form of epilepsy called NORSE, or New Onset Refractory Status Epilepticus, Nora Wong set out to get answers from doctors and researchers. When she found little informati

The Sudden and Life-Altering Impact of Adult-Onset Epilepsy
June 05, 2024

This month onSeizing Life Jon Tuteur shares his journey with adult-onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon di