Kisses For EB - With Dana & Ashley Cedeno: Episode 41
Kisses For EB is a non-profit created in 2017 after Kiba was born in 2015. EB is short for epidermolysis bullosa: a very rare genetic disorder that affects about 200 births yearly worldwide. EB individuals are missing the protein in their skin layers to keep their layers together. any sort of friction can cause blisters and wounds, there is no known cure and only pain management and wound care, EB individuals are more apt to get infections.
Kisses For EB was created to bring awareness to the community and to bring assistance to the individuals and families that live with the most horrible disease you have never heard of.