Esosa Ighile raising young women with Sickle Cell Disease to be commanders of their own ship. The whole family feels the pain of their pain. A fight for health equity. Welcome to this ninth episode in a series about Young Adults with Complex Medical Co...

Fatima Muhammed-Ighile learned to advocate for herself and has begun to advocate for others with Sickle Cell Disease. People who have regular lives and struggles and hopes and dreams also have sickle cell disease and are just trying to live a happy lif...

I just can't believe how much I'm enjoying just listening to the birds and listening to the wind.  It quiets my mind. I know you're shocked to know but I have a very active mind. It just never stops, which works some of the time,

I find myself on a pilgrimage. I thought I was tagging along with my wife's hiking group through rural, Northern Spain as a disabled person. But instead, I find myself on a pilgrimage. A pilgrimage of sounds. Bueno Camino -

Hey there, glad you could join me. I'd like to pause and take stock of the past six months and look a bit to the future. We're in the middle of a series with Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care.

Morgan and Amy Gleason sound like pretty normal daughter and mom growing out of the self-centered teen years into mutually appreciative adults. In this episode, we’ll hear about that journey toward respect and shared support leavened with humor about t...

Amy Gleason is Morgan Gleason's mom. We discussed parenting style, cues for calibrating autonomy, the importance of parent support groups, managing depression, self-care, and advocacy by transitioning young adults.

You're gonna love hearing from Morgan Gleason, already a veteran advocate after making a YouTube video when she was 15 that went viral about her frustrations as a patient in the hospital. Welcome to this fifth in a series about Young Adults with Comple...

Capacity for best health ebbs and flows. That's life. Some call citizen capacity - "patient engagement." But that's too weak. Growing and sustaining citizen capacity is citizen power. Our personal and community health depends on it.

Welcome to this fourth in a series about Young Adults with complex medical conditions transitioning from pediatric to adult medical care. This interview with mother and daughter, Alexis and Sara Snyder, exploring their evolving relationship.