Health Hats, the Podcast

Health Hats, the Podcast


Infodemiology. Too much. Not enough.

August 16, 2020

An overabundance of info makes it difficult to find trusted sources, reliable guidance when needed, in manner, context, & useful format. With Janice McCallum.

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Episode Notes
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Contents with Time-Stamped Headings
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Proem 00:53. 1

Introducing Janice McCallum 03:32. 2

Find a drop in the firehose 04:47. 2

Infodemiology 08:28. 3

Finding information: PubMed and search engines 13:23. 4

Absorbing the information found 16:34. 5

What do you trust? 19:64. 5

Trust but verify. Follow the money. 21:36. 6

Never trust a headline 25:16. 7

Information from patient communities 26:48. 7

Know the source 30:45. 8

Trusted information, trusted sources, Twitter 33:21. 8

Good information crowding out bad information 38:57. 10

Reflection 44:15. 11

Please comments and ask questions

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Credits
Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger

Sponsored by Abridge

Thanks to these fine people who inspired me for this episode: Andy Oram, Tyson Ortiz, Carla Berg, Grace Cordovano, Monica Cunningham, Gunther Eysenbach, Colin Hung, Marilyn Mann, Susan Woods
Links
Please read Report from The Guardian and Kaiser Health News about More than 900 US healthcare workers have died of COVID-19-and the toll is rising
Resources and references:
https://pubmed.ncbi.nlm.nih.gov/12517369/ (Gunther Eysenbach’s 2002 article on Infodemiology)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1839505/ (Gunther Eysenbach’s 2006 article on Infodemiology)
https://pubmed.ncbi.nlm.nih.gov/32310818/ (April 2020 article, where infodemiology is study of info usage patterns.
Fulltext link for 2020 article: https://www.jmir.org/2020/4/e16206/
WHO Infodemiology Conference webpage: https://www.who.int/news-room/events/detail/2020/06/30/default-calendar/1st-who-infodemiology-conference
Twitter thread on WHO Infodemiology conference: https://twitter.com/juansarasua/status/1277596552719224833
First Draft, UK org fighting misinformation, which participated in the WHO Infodemiology conference: https://firstdraftnews.org/ Check out Information Disorder report on their site.
For understanding medical research studies, Between The Lines, a book by Marya Zilberberg, MD: https://www.amazon.com/Between-Lines-Finding-Medical-Literature/dp/0985456205/ref=cm_cr_arp_d_product_top?ie=UTF8
https://participatorymedicine.org/epatients/2008/05/two-research-papers-published-on-patientslikeme.html (JM comment on infodemiology on post in Society for Participatory Medicine (S4PM blog).
https://participatorymedicine.org/epatients/2009/09/health-it-policy-e-patients-want-access.html (See JM comment to Susannah Fox’s post of S4PM blog).
Medical Library Association (MLA): https://www.mlanet.org/page/find-good-health-information
National Library of Medicine (NLM): http://www.