Careful what you wish for. Health equity and participatory medicine depend on the widespread meaningful use of patient family advisors. The trickle of such advisors should be a stream. Unfortunately, even if the supply could meet demand, health care administrators, researchers, entrepreneurs lack skill in making good use of patient family advisors. Libby Hoy leads Patient Family-Centered Care Partners, a small organization with a large vision for improving the quality, safety, and experience of healthcare through the development of authentic partnerships from the bedside caregiving relationship to the boardroom. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Introducing Libby Hoy and PFCC Partners 00:56. 1 Patient advocate. Patient family advisor. They differ. 04:30. 2 From Failure University to PFCC Partners 07:12. 2 Recognizing success 08:43. 3 Member / patient advisory panels 10:08. 3 Building capacity for patient family advisors 12:19. 3 Listen. What have you already done? 15:05. 4 Becoming CEO of your health 18:38. 4 Kids managing and deciding 21:32. 5 Engagement without policy. Ineffective. 24:40. 5 Preserve natural development. Pediatric and geriatric. 30:29. 7 The teachable spirit 36:11. 8 Reflections 38:41  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer Sponsored by Abridge Thanks to these fine folks who inspired me for this episode: Alexis Snyder, Carmin Quirion Wyman, Charlene Setlow, Chris Gordon, Harvey Hellerstein, Janice Tufte, Joan Maxwell, Katie Cascamo, Libby Hoy, Michael Mittelman, Michelle Blanchard, Sarah Cloud, Sarah Glover Links Patient Family-Centered Care Partners Mitochondrial Disease Stage Three Salivary Gland Cancer PFA Network abridge.com Society for Participatory Medicine National Institute on Aging Five Wishes Related podcasts https://health-hats.com/partner-with-people-at-the-center-end-to-end/ https://health-hats.com/independent-community-benefit-practice/ Stories, Not Noise, for You - the CEO of Your Health More Patient Experts at the Table About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me i...