Finding trusted evidence-informed guidance in worlds of chronic illness, clinician, researcher. Inclusion, equity, choices, community. iConquerMS. Conversation with Cherie Binns.

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Episode Notes
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Contents with Time-Stamped Headings
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Proem 00:55. 1

Introducing Cherie Binns 03:19. 1

Navigating for what ails you 05:58. 2

Peer groups, lived experience? 09:04. 3

iConquerMS 12:00. 3

Health equity in research 21:12. 5

Mismatch between questions and evidence 23:51. 6

Community-based research 25:45. 6

Evolution of PCORI and patient voice 29:05. 7

Shift to public health 32:10. 7

CDS Connect 34:26. 8

Reflection 37:36. 9

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Credits
Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger

Sponsored by Abridge

Thanks to these fine people who inspired me for this episode: Libby Hoy, Harvey Hellerstein, Greg Merritt, Charlene Setlow, James Pantelas, Alexis Snyder, Janice Tufte, Apriani Oendari, Ed Lomotan, Lacy Fabian
Links
Multiple Sclerosis Foundation

MSFOCUS magazine

iConquerMS

PCORI (Patient-Centered Outcomes Research Institute)

PCORnet Engagement Committee

PFCC Partners.
Related podcasts and blogs

I started a webpage for CDS, Clinical Decision Support, Making Health Choices.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this.

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The Show
Proem
Regular readers and listeners, you likely sense a theme these past few weeks.  Yes. Health Hats exists to learn on the journey toward best health to make health choices and decisions. The journey in constellations of information, personality, technology, culture, and life constantly swirl, seldom aligning. We, individuals, like planets, seem to orbit as well, somewhat habitual, hit with occasional inertia-busting forces.