Health Hats, the Podcast

Health Hats, the Podcast


Independent Community Benefit Practice

October 27, 2019

Michael Mittelman received three kidneys via transplant, his current kidney from a living donor, his mother. He identifies as an advocate for organ donation, specifically, living organ donors. He also works across disease areas to help companies understand and involve patients. He cares deeply about access and equity in healthcare. For this episode, I’m going to test calling our work as advocates, activists, and partners, an Independent Community Benefit Practice. Blog subscribers: Scroll down through show notes to read the post. If you'd like to listen to the podcast, click here or the title Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)   Introducing Michael Mittelman 00:56. 1 Three kidney transplants 05:36. 2 Starting a business, the American Living Donor Fund 09:47. 3 The road to an Independent Community Benefit Practice 16:43. 5 Social media impact on advocacy 19:05. 5 Pay for professional practice 22:19. 6 Reflections 30:20  7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer Sponsored by Abridge Links Society for Participatory Medicine Patient-Centered Outcomes Research Institute American Living Organ Donor Fund Gift of Life. Transplant Games National Kidney Foundation PCORI Ambassadors Related podcasts CMS: Use Patient Experts in Measure Development, but Don't Pay Them? Paying Patient Experts E-Patients, experts with lived experience Patient Engagement – Careful What You Wish For Lessons Learned as a Patient-Caregiver Activist More Patient Experts at the Table About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Introducing Michael Mittelman Neither last week’s podcast guest, Janice Tufte, or I identify as a patient advocate – a person advocating on behalf of a disease state.  I have multiple sclerosis but don’t identify as a multiple sclerosis advocate.