Patient expert, co-investigator, patient partner, subject matter expert, patient advocate, patient/caregiver activist. Many labels. Whatever you call us, invite those of us with different and unique experience, skills, and circumstances to sit at decision-making tables. Then treat us as equals and respect us. Then do something with what we offer.

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Episode Notes
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Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here
Contents with Time-Stamped Headings
to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)

Opa as credential 00:55. 1

Labels: Patient, Person, Expert 01:51. 1

Introducing Janice Tufte 05:20. 2

Co-Investigator 05:50. 2

Patient Partner 08:11. 3

Reflections 10:50  3

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Credits
Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer

Sponsored by Abridge
Links
Society for Participatory Medicine
Patient-Centered Outcomes Research Institute
Related podcasts
CMS: Use Patient Experts in Measure Development, but Don't Pay Them?
Paying Patient Experts
E-Patients, experts with lived experience
Patient Engagement – Careful What You Wish For
Lessons Learned as a Patient-Caregiver Activist
Patient Centered Outcomes Research
Book Review: Engage! Transforming Healthcare through Digital Patient Engagement

About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this.

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The Show
Opa as credential
Boston Children's, a Harvard-affiliated Hospital, seemed credential obsessed when I started working there. While setting up my email account, I entered my credentials as Opa, RN, MPH, CPHQ. Opa means grandpa in Dutch and German. Opa is my most important credential. Might as well be first.  During the four and a half years working at Boston Children's, only one person on the inside ever asked me what Opa meant. Almost everyone on the outside did. Many Googled it. They came up with: Office of Professional Accountability, Office of Pharmacy Affairs, Online Public Access,