Lauren Reimer-Etheridge lives well with a rare condition where her gut can’t absorb nutrition. Incompatible with life, Lauren takes and totally manages all her nutrition through her veins since age 13. In this fourteenth podcast episode in the series about Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care, Lauren talks about her advocacy with parents and young adults: showering, self-management, drugs, sex, and rock and roll.

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Episode Notes

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Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here
Contents with Time-Stamped Headings
to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)

Introducing Lauren Reimer-Etheridge 00:51. 1

Self-care 0 to 60 at age 13 06:05. 2

Independent agent transitions off a cliff 11:14. 4

Self-care with flexibility for disequilibrium 17:09. 5

Advocacy for the practicalities 18:59. 6

Sex, drugs, and rock and roll 23:16. 7

Warm hand-offs, extreme hand-offs, slow hand-offs 26:52. 8

A Pretty Couch Potato 30:55. 9

What do you have again? 32:54. 10

Reflections 35:06. 10
Links
Find the full series here
HealtheVoices
Chronic intestinal pseudo-obstruction
Sick Boys
Lauren's blog and website: pretty couch potato
Pretty Couch Potato on Instagram
Notes
Credits
Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer
Photo by Iker Urteaga on Unsplash

About the Show
Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  We will listen and learn about what it takes to adjust to life's realities in healthcare’s Tower of Babel.  Let's make some sense of all this.

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The Show
Introducing Lauren Reimer-Etheridge
Lauren We met at the HealtheVoices Conference in Dallas sponsored and paid in full by Janssen Pharmaceuticals with three hundred forty patient advocate participants selected by lottery, half newbies to the conference and half previous attendees. I was a newbie. A conference planned by patient advocates; sessions led by patient advocates. The amazing part of the HealtheVoices conference was hearing everybody being matter-of-fact and appreciative of the craziness of their particular brand of ways the body can go off the rails. If stories about this insanity appeal to you, I recommend listening to the podcast, Sick Boys. Again, find a link in the show notes.