The reason why there’s no cure for CFS (Chronic Fatigue Syndrome) is because doctors, scientists and whoever have not nailed down the cause of what is going wrong in the human body. For CFS patients, certainly many abnormalities have been found so far in immune cells, blood cells, organ and system functions and the body’s semi-nebulous, hard-to-pin-down body systems of fatigue and sleep.

However, if no one gets to the root of the underlying problem, then the ultimate cause of CFS (or causes) will not be found, identified and considered for impact on a patient’s body, mind and spirit. That truth goes for absolutely anyone and everyone who is sick with the illness. That truth also applies to many other hard-to-diagnose illnesses. There certainly are many of them. The closest cousin to CFS is Fibromyalgia, lurking in the shadows with a little of some CFS symptoms and a whole lot of just a few. Like I said, kissing cousins, maybe even siblings…still without a cure either.

This last FDA meeting, which began April 25th, focused on symptomatology, not causes of what is wrong. *See the link below.

Of course, every CFS person would like to get rid of all of their symptoms, but at what cost? Fifteen more drugs that you can’t afford and/or may overload your system with an abundance of drug side effects? Symptom relief is good, but it is not the end-all of the problem. We’re starting at the wrong end of this problem!

(Today’s podcast is 7 minutes 39 seconds.)

We, the FDA, HHS, CDC, NIH and more must remember that there has to be one or more reasons why as many as 1 million people (in the US alone; more outside it) suffer with Chronic Fatigue Syndrome. Not only does this illness diminish our quality of life, but it takes wages out of the economy. It takes tax dollars out of the federal and state coffers. It takes money to support us with disability income payments and benefits, like food stamps. And worst of all, it takes money out of our family’s income that is needed for not only everyday needs, but also to educate our children.

In the long run, if enough years go by, it creates a shaky retirement environment. You, the patient, has lived years and years without being robust, feeling well, enjoying life and planning for your future. With the prospect of living more years as a “sick” person, the need to determine the cause of CFS has not been found.

I say that POO! on symptom relief. In this effort, the CFIDS Association of America is wrong. Instead, let’s have the FDA and more find the cause of CFS. That’s all we need right now: the cause of CFS. Give people real, long term hope. Let’s do the necessary research work and investigation to find the root cause of this tremendous health problem!

As I end today’s Health Matters Show, I am grateful to the Kafka Pandemic website and supporters who addressed these issues for the FDA Meeting. May we all continue to have people who aren’t afraid to fight or speak their minds -or- find the cause of CFS.

Thank you, Cinda Crawford

Host of the Health Matters Show

(from Samuel, Kafka Pandemic)…I believe that this meeting is at least in part designed to pacify advocates and help out a few drug companies who want to sell palliatives like stimulants.

I will be happy to be corrected, but I do not welcome apologia from those who profit (or believe that they do) from the status quo.

I implore all people to:

1) Please attend the meeting

2) Please make it plain that we are talking about a DISEASE

3) Please include the [ENTIRE range of severity] in everything related to the disease