Child Life On Call: Parents of children with an illness or medical condition share their stories wit

Child Life On Call: Parents of children with an illness or medical condition share their stories wit


Episode 90 | Jenny’s Story: Head-Conjoined Twins and Adoption

October 13, 2021

Today I’m introducing you to Jenny Hull, a single mom to Josie who just turned 20 years old.  Jenny is also the CEO and founder of a nonprofit organization called Once Upon a Room.  They are changing the game for kids in hospitals, and we’ll get into all the amazing things they do toward the end of our conversation.  Jenny is one of the most comforting and compassionate people I’ve ever had the pleasure of talking with, and her family story is unlike any other - from head-conjoined twins given less than a 1% chance of survival, to adoption, to starting a nonprofit with the help of two incredible teenagers.  I can’t wait to share this story with you!   In this episode, we talk about… [1:12] Meet Jenny Hull [2:40] When Josie and Teresa came into Jenny’s life [5:42] Helping Josie to thrive [8:45] Teresa’s story [11:41] Discussing the twins’ medical issues with Josie over the years [16:31] Staying on top of medical and therapy appointments as a single mother [22:10] The evolution of Once Upon a Room [31:30] The requirements for having your room decked out [36:56] Connect with Once Upon a Room and check out their work   onceuponaroom.org instagram.com/onceuponaroom facebook.com/onceuponaroom