Child Life On Call: Parents of children with an illness or medical condition share their stories wit

Child Life On Call: Parents of children with an illness or medical condition share their stories wit


Episode 50 | Eileen's Story - A son with Recessive Dystrophic Epidermolysis Bullosa

November 11, 2020

In this episode, Annie, Certified Child Life Specialist, talks to Eilieen. She is the amazing mom of a determined, fun loving, 4-year-old hero named Brady. Brady was diagnosed with Recessive Dystrophic Epidermolysis Bullosa (RDEB).

While he inspires all who meets him, his favorite thing is just being a typical boy and being treated as such. After a move from Texas to Colorado to find the best care and environment for him, life shifted and their family became advocates in the RDEB community.