Child Life On Call: Parents of children with an illness or medical condition share their stories wit

Child Life On Call: Parents of children with an illness or medical condition share their stories wit


Meredith Howell’s Story – a daughter with a rare genetic condition (BBSOAS)

April 04, 2019

Meredith, mom to now 8-year-old Lola, shares her experience with her daughter who was diagnosed with Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) shortly after she was three-years-old. However, their story didn't begin there.   As...