Child Life On Call: Parents of children with an illness or medical condition share their stories wit
Episode 1 | Kelli’s Story – A daughter with Goldenhar and Caudal Regression Syndrome
After a long pregnancy on hospitalized bedrest, Kelli describes the birth and first year of her twin girls, one of which was born with two genetic conditions, Caudal Regression Syndrome and Goldenhar Syndrome. The journey to diagnose these conditions was a long one, and Kelli talks about what that process was like, and what is like to […]