Amanda Moore joins us to talk about her new role as CEO of the Angelman Syndrome Foundation and her leadership within the rare disease community.

Amanda and her family live in Indianapolis, Indiana. In 2015 Amanda and her husband, Adam, adopted twin boys, Jackson and Braden. Jackson was diagnosed with Angelman Syndrome in January of 2017 and since then Amanda has made it her mission to be an advocate for all people with Angelman Syndrome.