In this powerful episode of Boundless B, host Kai M Sorensen speaks with Alison Betty, longtime public policy expert and co-founder of alignco, about the critical role of advocacy in healthcare—particularly for individuals impacted by Hemophilia B.

They explore how healthcare policy is shaped, why misinformation is a growing challenge for patients and providers alike, and how storytelling can cut through the noise to drive real change. Alison stresses that everyone has a story worth telling, and that even small efforts—like calling your representatives—can make a big difference.

Whether you're navigating Medicare, Medicaid, the ACA or private insurance, this episode offers guidance, inspiration, and a call to action for anyone ready to engage in meaningful patient advocacy and community engagement.

This episode is made in partnership with Balancing Life’s Issues.

Additional Resources:

alignco || Alison BettyCall your Rep, U.S. Capitol Switchboard: 202-224-3121https://www.protectcoverage.org/membersThe Coalition for Hemophilia BBalancing Life's Issues

Key Takeaways:

Advocacy is about using your voice—for yourself and others.Everyone’s story matters, even if it’s not dramatic.Misinformation in healthcare creates confusion; seek out multiple sources.Policy changes often happen in small, impactful steps.Personal stories create emotional connections that influence decision-makers.Effective advocacy is a dialogue, not a monologue.Staying informed on Medicare and Medicaid changes is critical.Community support amplifies your voice and strengthens the message.