Guest(s): Valerie Schneider, Christopher Maddix, Rick Starks

Episode Overview:

This is part two of our special 2024 Volunteers of the Year series, celebrating the incredible individuals who help the Coalition for Hemophilia B thrive. In part one, we highlighted Colin, Fel, and Milinda—if you haven’t listened yet, be sure to check it out! Today, we turn the spotlight on three more inspiring community leaders: Valerie Schneider, Christopher Maddix, and Rick Starks.

Valerie Schneider’s journey began when her son was diagnosed with severe Hemophilia B at birth. She has since dedicated herself to ensuring that no family navigating this condition feels alone.

Christopher Maddix has been part of the Coalition since his teenage years, living with Hemophilia B and an inhibitor. Through volunteering, he found his voice—becoming an advocate and mentor for others on a similar path.

Rick Starks has lived through decades of advancements in Hemophilia B treatment, but it wasn’t until his own daughter’s diagnosis that he fully embraced the community. Through his work with the Coalition and his expertise in Tai Chi and movement, he has helped many manage both the mental and physical challenges of living with Hemophilia B.

Though their experiences are unique, Valerie, Christopher, and Rick share a common mission—giving back to the community that changed their lives and ensuring that others receive the support they need.

This episode is made in partnership with Balancing Life’s Issues.

Additional Resources:

The Coalition for Hemophilia B

Balancing Life's Issues