The CF Together Podcast

The CF Together Podcast


"From IVF to Natural Birth: A New Mum’s Journey living with cystic fibrosis + latest research on Chronic Pain living with cystic fibrosis

May 03, 2025

In this episode of the CF Together podcast, you will hear two heartfelt and powerful conversations from within the cystic fibrosis community.

First, Lyndall Grace, who lives with cystic fibrosis, speaks with Savannah May about her incredible journey to motherhood. Savannah shares her experiences with IVF, the challenges and triumphs of parenting with CF, and the unexpected joy of conceiving her second child naturally after starting Trikafta.

Then we hand the mic to Raphael Recht, who explores the often-overlooked topic of chronic pain in CF. He’s joined by joined by Anastasia Ward and Dr. Keith Ooi, who’ll walk us through their research findings on chronic pain in CF — a topic that’s gaining much-needed attention.

And finally, Kelly Exner, Clinical Services Manager at CF Together, will talk about practical pathways to accessing help for chronic pain management.


Follow here for more on Anastasia Wards Research into Chronic pain living with cystic fibrosis

Pain in adults with cystic fibrosis – Are we painfully unaware? - Journal of Cystic Fibrosis