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Season 3, Episode 5: Koolen de Vries with Becky Tilley
May 21, 2023
Jonathan sits down with Becky, a remarkable individual living with Koolen de Vries, a rare genetic disorder. In this heartfelt episode, she shares her personal journey and opens up about her children's experiences with the disease. Tune in to gain ins
Jonathan Cappiello was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats. Each week, h
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