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Season 2, Episode 8: Jack’s Corner Foundation, SPG 50, Devin and Mike Dwyer
November 20, 2022
On today’s episode, Jonathan sits down with Devin and Mike Dwyer.
They are parents to Jack who has SPG50. They discuss their journey with Jack and his rare disease. SPG50 is degenerative, both physically and mentally, and that spasticity progresses
Jonathan Cappiello was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats. Each week, h
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