The Tony V. Project

The Tony V. Project


Episode 5: The Pursuit for a Cure for Sanfillipo Syndrome | The Tony V. Project

January 25, 2018

Jen and Samir Sarkar, creators of "Carters Challenge," go into detail on their quest for a cure for Sanfilippo Syndrome, how they have dealt with learning their son Carter has this terminal disease, and how their perseverance can inspire many other parents and families out there dealing with tragedy.