If We Knew Then - Down Syndrome Podcast
Latest Episodes
171. Alzheimer’s Disease In People with Down Syndrome - Dr. Elizabeth Head
This week we had the privilege to talk to Dr. Elizabeth Head, Professor and Vice Chair for research at the University of California, Irvine in the department of Pathology. Dr. Head has published more
170. Celebrating The Life of Carl Erskine with Ted Green
The world lost pioneering Down syndrome advocate Carl Erskine on April 16, 2024, at the age of 97. Carl and his wife Betty, were involved deeply with the Special Olympics and charities which aimed at
169. The Annual DSDN Retreats with Ben Hughes
This week we are fortunate to have Ben Hughes back on the podcast to discuss the Down Syndrome Diagnosis Networks (DSDN) annual Rockin Retreats that offer our community the connection and respite
168. Liam's 14th Birthday: Sharing Some Insight
Our son turned 14 last weekend and in this episode we reflect on the joys, challenges and growth we've experienced together on this journey with Liam.Episode Transcript: https://ifweknewthen701833686
167. A Discussion About Using The R-Word with Lynette Louise
This week we revisit our interview with Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Neurofeedback but early on in the conversation we moved to a s
166. Finding The Right Supports Without Shame - Julie Picot
This week we have the wonderful Julie Picot back on the show to discuss her experience transitioning her daughter, Elyse from TK to Kindergarten. We also touch upon how very often parents feel shame w
165. Picking The Right Pediatrician with Dr. Ilona Kleiner
Dr. Ilona Kleiner has been both our children's pediatrician since birth. Today we discuss with her the importance of always seeing the whole child and how her care for Liam really isn't any different
164. Charlotte and Riley: Not Taking No For An Answer
In this episode, we discuss Charlotte Fiens path to advocacy, breaking down the barriers of education, the love story between her and her husband Riley, and how her infectious can-do attitude has inf
163. Revisiting Patience In The New Year with Maezen Miller
Happy Martin Luther King Day! We start this new year by revisiting with our friend, Zen Buddhist Priest, Maezen Miller. We discuss having patience and letting go in order for it to all unfold. Believi
162. Living In The Moment and Taking the Time to Reflect On Life
Follow Stephen while he unexpectedly flies back to Louisiana due to his mothers illness. He reflects on the importance of experiencing all of lifes moments and truly being present.Episode Transcrip