Health Hats, the Podcast

Health Hats, the Podcast


A Zebra, Not a Horse: Rare Patient Voice

February 16, 2020

Rare Patient Voice: Gateway to paid Patient Advocacy. Diagnosis-based experience brokers. Interview with Wes Michael.

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Episode Notes
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Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here
Contents with Time-Stamped Headings
to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)

Introducing Wesley Michael 00:50. 1

Market research from Wheaties™ to healthcare 06:34. 2

Diagnosis-based experience brokers 10:11. 3

Health equity? 12:57. 4

Waving a magic wand 17:50. 5

Paying for lived experience 20:03. 5

Focused and growing 22:16. 6

Caregivers sharing their voice 24:37. 6

Reflections 28:13. 7

Joey van Leeuwen “Up” 29:28  7

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Credits
Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger

Sponsored by Abridge

Thanks to these fine people who inspired me for this episode: Jack Barrette, David Goldsmith, Andrew Hopper, Jen Horonjeff, Joey van Leeuwen, Thatcher Hussain, Greg Merritt, Grace Cordovano, Regina Holliday, Pat Mastors, Libby Hoy, Geri Lynn Baumblatt, Mary Anne Sterling

Links

Rare Patient Voice

WEGO Health

Savvy Coop

Patient Family-Centered Care Partners

 

Related podcasts and blogs

https://health-hats.com/e-patients-experts-with-lived-experience/

https://health-hats.com/teachable-spirit-patient-family-advisors/
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this.

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