Rare Disorder Podcast

Latest Episodes

RaresiesRule! With Joanne Paquette

January 12, 2021

Joanna Trieu (Director External NORDSA) interviews Joanne Paquette about her experience as a rare disease advocate. Topics, including pinstriped hospital pyjamas, opportunities for advocacy, and community support, are discussed in this riveting discussion

NORDSA, the National Organization of Rare Disorders Student Association at the University of Alberta, focuses on topics concerning rare disorders and diseases. Whether it be raising awareness for them, advocating for research funding, or discussing the ni

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