Today we are gong to hear from Toni Harrison, who was initially diagnosed with hypermobile EDS. After an event, she received genetic testing that showed she actually has VEDS. In this episode, she is going to share her experience and how her VEDS diagnosis impacts her life. 

Find more information about VEDS, including support groups and medical webinars, at https://TheVEDSMovement.org. 

If you would like to share your story with VEDS on this podcast, visit 

https://staying-connected.blubrry.net/contact/

Links and events mentioned in the episode

VEDS Camp, hosted by the Ehlers-Danlos Society in partnership with The VEDS Movement

https://www.ehlers-danlos.com/events/veds-family-camp/

The Marfan Foundation Conference: 

https://marfan.org/conference/

The Marfan Foundation Walk for Victory:

https://marfan.org/walk

The Marfan Foundation Symposiums: 

https://marfan.org/resources/educational-opportunities/

Support

You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone 

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon Holtom
Kacey Keegan
Adventuresinlove4Andie

Disclaimer

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services.

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