Today we are gong to hear from a member of our community in the UK, Clare Stacey, who was diagnosed with VEDS following her mother’s death when Clare was 14 years old. In the episode, she is going to share how her understanding of and interaction with her VEDS diagnosis has changed as she has gotten older and dealt with medical events of her own. 

Find more information about VEDS, including support groups and medical webinars, at https://TheVEDSMovement.org. 

If you would like to share your story with VEDS on this podcast, visit 

Links mentioned in the episode:

The Rare Disease Podcast 4 Medics: Not Just Hypermobility

https://podcasts.apple.com/us/podcast/not-just-hypermobility/id1591571033?i=1000562501357

VEDS Camp, hosted by the Ehlers-Danlos Society in partnership with The VEDS Movement

The Marfan Foundation Conference:

The Marfan Foundation Walk for Victory:

Support

You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone 

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon Holtom
Kacey Keegan

Disclaimer

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services.

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