Major Pain

Latest Episodes
Finally Diagnosed: Her Genetic Condition Hid in Plain Sight for Decades
When Ashley scheduled an interview for the Major Pain podcast to discuss her chronic illness, she was prepared to talk about living with an undiagnosed disease. But to her shock, just weeks before rec
Living with Celiac Disease, Chronic Migraines, Covid Complications, Fibromyalgia and more
Kristin has lived with pain since she was 9 years old, a journey that has taken her through chronic migraines, celiac disease, covid complications and remaining medical mysteries. As a child she would
Chronic Illness Author and Advocate Ilana Jacqueline Shares Her Rare Disease Journey
As a chronically ill child, Ilana was repeatedly accused of faking her illness when seeking medical care. Doctors refused to dig deeper into why this particular child was consistently afflicted with b
The Link Between Childhood Abuse and Endometriosis: A Survivor’s Personal Account
Amanda grew up experiencing constant trauma. Her mother was deeply abusive, to the point that Amanda’s father was given custody at 6 years old. He moved the family to California and joined a religious
Living with Two Invisible Conditions: Hypermobile Ehlers-Danlos (HEDS) and Autism
Brandy grew up knowing she was different. She struggled both socially and physically, having problems picking up social cues while constantly experiencing injuries and joint dislocations. When seeking
Caitlin’s Chronic Illness Puzzle: POTS, Spondylolisthesis, Hypermobility, FND and More
Many children beg their parents for a pony, but Caitlin actually made that dream a reality. She wasn’t allowed to have a pony until proving she could afford one and look after it by herself, so as a t
Our One Year Anniversary! Catching Up with Previous Guests
This week we are celebrating the one year anniversary of the Major Pain podcast, kicking off the second season of the show by catching up with previous guests! India and Brooke each have a new diagnos
Chronic Headache and Pineal Gland Cyst, Weighing the Decision to Operate
Misty is a 43 year old massage therapist and artist with a complex medical history. Multiple motor vehicle accidents triggered a cycle of chronic pain, including a trauma induced lipoma in their low b
Living with Refractory Epilepsy
Tiffany had her first seizure at 16 years old. She had gone to bed after studying for a history test, and woke up the next day on a gurney bound for the hospital. This first seizure caught her complet
Living with Adult Cerebral Palsy, Seeking a Clear Care Pathway
Growing up in the UK, Emma received care and services that helped her adapt to life with cerebral palsy. For some patients this disease affects cognition and neurology, but Emma was born with a less s