Friedreich Ataxia (FRDA) was named after Nikolaus Friedreich, who first described it in 1863. It was the first form of hereditary Ataxia to be distinguished from other forms of Ataxia. It is caused by an abnormality of a single gene called the Frataxin (F

Today’s topic is Doctor Visits So how many of you can relate to this You show up at the doctor’s office - you are laser focused and ready to hear everything the doctor has to say….. It starts off great and then…………….. Yeah Something happens…… it’s as if t

Hereditary Ataxias are genetic, which means they are caused by a defect in a certain gene that is present from the start of a person’s life, inherited from your parents. Hereditary Ataxias can be divided into those that are dominantly inherited, passing f

Participating in a clinical trial is one way to take an active role in furthering understanding and treatment of Ataxia. It is also a way to get access to new treatment options before they are widely available

Episodic ataxia is a group of related conditions that affect the nervous system and cause problems with movement

What are you eating? There is a direct relationship between what you eat and how you feel. Making better food choices is easier than you think. Listen in as I share my perspective on healthy eating

Patient Registries are essential tools for Ataxia researchers. The purpose of a patient registry is to advance the development of treatments for a disease by connecting researchers with those who are affected with that disease. If you or a family member a

Hi #kNOwATAXIA Nation! Ever wonder what's impacti…

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