Ataxia, Did You Know?

Ataxia, Did You Know?


Latest Episodes

Maximize your Doctor Visits
December 30, 2020

Maximize your Doctor Visits Strategies to include before your next doctor visit to maximize your appointment time.   An average appointment is 30 - 60 minutes. That’s not a lot of time. In this session you will learn strategies to make the most out of tho

Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise
May 05, 2020

#ThoughtfulTuesday Exercise , Take a step, Stay tune to the end! Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise #kNOwATAXIA MGH Neurology

Dr Jeremy Schmahmann Ataxia patients prevent infection COVID-19
April 10, 2020

Dr Jeremy Schmahmann.. is head of the Ataxia Unit at Massachusetts General Hospital in Boston, Massachusetts MINDlink Foundation Ataxia patients: steps to take care of yourself to prevent infection COVID-19 https://youtu.be/c-ic6Wn9m0Q

Be a part of the Joint Mission Bataan
February 25, 2020

Listen in to my conversation with Mike De Rosa and Mark Minkin. Find out how they and other representatives from across the country are raising funds and awareness about Ataxia on March 15th https://ataxia.org/jointmissionbataan/ The Joint Mission Bata

SCAR Scale
February 11, 2020

Feeling alone in your Ataxia diagnosis – finding the right support system is key.
December 17, 2019

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Making the most out of the first appointment with your neurologist.
November 13, 2019

Making the most out of the first appointment with your neurologist.By Dana Mauro

Ataxia neurologists how to prepare
November 05, 2019

Taking an active role and advocating for patient needs is important when seeking an Ataxia diagnosis. Begin with a discussion with a primary care physician. However, some physicians may not be familiar with Ataxia because it is a rare disease. If Ataxia i

Spinocerebellar #Ataxia? Biohaven is sponsoring a clinical trial
November 03, 2019

Are you or a loved one living with Spinocerebellar #Ataxia? Biohaven is sponsoring a clinical trial for an investigational drug to determine if it can impede or improve symptoms of SCA. See if you qualify. Click the link below. www.scatrial.org

How is Ataxia is diagnosed
September 24, 2019

Ataxia is diagnosed using a combination of strategies that may include medical history, family history, and a complete neurological evaluation. Various blood tests may be performed to rule out other disorders. Genetic blood tests are available for some ty