If We Knew Then - Down Syndrome Podcast

If We Knew Then - Down Syndrome Podcast


Latest Episodes

168. Liam's 14th Birthday: Sharing Some Insight
March 07, 2024

Our son turned 14 last weekend and in this episode we reflect on the joys, challenges and growth we've experienced together on this journey with Liam.Episode Transcript: https://ifweknewthen701833686

167. A Discussion About Using The R-Word with Lynette Louise
February 25, 2024

This week we revisit our interview with Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Neurofeedback but early on in the conversation we moved to a s

166. Finding The Right Supports Without Shame - Julie Picot
February 18, 2024

This week we have the wonderful Julie Picot back on the show to discuss her experience transitioning her daughter, Elyse from TK to Kindergarten. We also touch upon how very often parents feel shame w

165. Picking The Right Pediatrician with Dr. Ilona Kleiner
January 28, 2024

Dr. Ilona Kleiner has been both our children's pediatrician since birth. Today we discuss with her the importance of always seeing the whole child and how her care for Liam really isn't any different

164. Charlotte and Riley: Not Taking No For An Answer
January 21, 2024

In this episode, we discuss Charlotte Fiens path to advocacy, breaking down the barriers of education, the love story between her and her husband Riley, and how her infectious can-do attitude has inf

163. Revisiting Patience In The New Year with Maezen Miller
January 14, 2024

Happy Martin Luther King Day! We start this new year by revisiting with our friend, Zen Buddhist Priest, Maezen Miller. We discuss having patience and letting go in order for it to all unfold. Believi

162. Living In The Moment and Taking the Time to Reflect On Life
October 22, 2023

Follow Stephen while he unexpectedly flies back to Louisiana due to his mothers illness. He reflects on the importance of experiencing all of lifes moments and truly being present.Episode Transcrip

161. Down Syndrome Awareness Month 2023: Bringing Awareness to Our Community’s Potential
October 15, 2023

October is Down Syndrome Awareness Month and in this episode, Stephen and Lori discuss another angle in your next Awareness Campaign. Some of the most important people to make aware of our community's

160. The Inclusive Hub: A Gym For People of All Abilities with Liam Starkey
October 08, 2023

Joining us today is Liam Starkey from The Inclusive Hub. The Hub was started in 2016 helping small groups of Autistic children around Liverpool, England take part in non-contact boxing and fitness ses

159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community
October 01, 2023

Today we are joined by Sandra Baker from the Down Syndrome Association of Los Angeles (DSALA) and Dr. Brian Skotko from the Down Syndrome Clinic To You (DSC2U) to discuss their collaboration in suppor